Girl with rare condition raises more than £700 doing laps in her wheelchair

A kind-hearted Sunderland girl who has a rare condition leaving her struggling to walk raised more than £700 to buy Easter eggs for her local community.

Eva Robinson, seven, from Washington, was diagnosed with Perthes disease, a rare childhood condition that affects the hips, when she was six.

The condition causes Eva to have a limp and restricts her range of movement meaning she spends most of her time in a wheelchair.

But she hasn’t let her condition stand in the way of her helping others and took on her own ‘Captain Tom Moore challenge’ by doing laps around a garden in her wheelchair.

On March 20, determined Eva did laps around the Willow Brook residential complex garden to raise £80 to buy Easter eggs as part of local community group the Little Onion Club’s Easter egg drive.

Incredibly, Eva raised more than £700 in total and has also donated eggs to several hospitals and schools across the region including Newcastle’s Royal Victoria Infirmary.

Donations also flooded in through local companies including Sparkle Cakes, JK Bouncy Castles, Guardians Of The North and Suzie Jo from LMF Creations.

Mum Kaylie Robinson, said: “It was quite difficult for her, she kept getting her wheelchair stuck in the mud so it was a bit of a nightmare for her but she kept going!

“She was over the moon with what she raised, there were a few happy tears.

“If she does stuff through the day she suffers on the night for it so we have to sit on her bed and rub her legs. She just loves helping other people.

Eva Robinson was diagnosed with Perthes disease
Eva Robinson was diagnosed with Perthes disease

“If anyone gives her anything she just says I’d rather give it to someone else as they need help. We’re just so proud of her.”

Eva is a member of the Little Onions Group which provides gardening activities and workshops for children to encourage them to get outside.

The community group runs sessions on Mondays at Donwell House Care Home and on Thursdays at Willow Brook which provides assisted living.

It was founded by Vicky Calder, 37, from Washington in 2019 and so far has 30 children with ages ranging from three to 15.

She said: “We do a lot of intergenerational work and we want to get the children outside.

“We plant vegetables, plant flowers and we do litter picking as well so they’re very aware of the environment. We also do lots of arts and crafts.

“Throughout lockdown, we’ve kept in touch with our children and families and have sent them seeds and arts and crafts.

“It’s been really hard for kids, I think the socialising side of things has been quite difficult for them.”

Vicky said the Little Onion Club were blown away by Eva’s fundraising mission to raise money to get Easter egg for residents in Willow Brook.

She said: “Eva has been a member when it first started and as Eva’s health has deteriorated she would come in after school and she was so tired, she couldn’t do any after school activities.

“Eva had done a lot of fundraising over Christmas but she wanted to do something to raise money for Easter eggs in the local community to make people smile. She’s just incredible.”

Activities at the Little Onion Club are £3.50 per week and £1 per week for siblings which include a fruit snack and a drink.

You can find out more details here.

Chronicle Live – Sunderland